Health & Wellness for Port Ludlow

Readings -- References -- Bibliography
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Bibliography / References

("Items sounding both interesting and relevant")

Directories

  • Health News Directories (PL*Health): Local & Regional News | National & International News

  • NORTH OLYMPIC PENINSULA OLDER AMERICANS RESOURCE DIRECTORY [by Peggy Schafran, Beverly Browne, Alice Luongo, Port Ludlow, 2006] "This directory of health-related and professional services has been compiled by your Port Ludlow neighbors to help new residents locate resources and to aid those seeking information while under stress. All of the information is available through other sources; here it is available in one place."

  • PortLudlowToday (PLT) Wellness Guide "Welcome to our community health care resource guide. This is a continuing "work in progress" and hope you will find it of great value."

  • NWSeniors.Com/ OlyPen "Dedicated to providing the region's most complete list of resources available to seniors, their families, and caregivers"
    Contact Us:
    Email: guide@olypen.com
    Toll-Free: 866.379.3710
    Fax: 360.379.3710
    Mail: PO Box 1717
    Port Townsend, WA98368

  • O3A's Online "Resource Center" (Olympic Area Agency on Aging: Online Directory) "In order to support people aging in place and living independently in their own homes, the Olympic Area Agency on Aging (O3A) has developed a multidimensional approach that includes direct and contracted service delivery; community outreach with disease prevention and health promotion; and strategies to increase access to medical, health care, and supportive services."
    "Here you will find quick access to websites, forms and online brochures on a wide variety of topics of interest to..." older adults
    family caregivers
    professionals in the field of aging.     Print Publication available
    Jefferson County
    915 Sheridan Street, Suite 202
    Port Townsend 98368
    Toll-free: 800-801-0050
    Local: 360-385-2552

  • Senior Activities & Healthy Aging: Online Information & Resources
    (Seattle Area & Puget Sound Region)

  • Directory of Health Organizations U.S.Dept of Health & Human Services -- Division of Specialized Information Services Features DIRLINE and Health Hotlines

Selected Journals

  • JAMA: Journal of the American Medical Association JAMA, published continuously since 1883, is an international peer-reviewed general medical journal published 48 times per year. JAMA is the most widely circulated medical journal in the world. The online version is made freely available to institutions in developing countries.

  • Journal of Medical Internet Research JMIR - the leading OPEN ACCESS* peer-reviewed transdisciplinary journal on health and health care in the Internet age. Vol.1 (1999) - Vol.13 (2011)
    JMIR is a pioneer of open science and a founding member and current board member of the Open Access Scholarly Publishers Association

  • Medical Decision Making (Journal - SAGE)
    • Online First [by which forthcoming articles are published online before they are scheduled to appear in print]

Selected Research Findings in the Papers


A - Z (by authors)
Research, Professional & Patient-Focused Literature

  • Agus, David, The End of Illness: The Key to a Healthier Life. [Simon & Schuster, 2011/2012] Kindle Edition "This indispensable book is not only a manifesto -- a call for revising the way we think about health -- it's also filled with practical but impossible-to-ignore suggestions that may surprise readers,..."

  • Annotated Bibliography of Shared Medical Decision Making decisionaid.ohri.ca/index.html (More recent version)
    "Welcome to Patient Decision Aids - part of the Ottawa Health Research Institute, Clinical Epidemiology Program and affiliated with The Ottawa Hospital and the University of Ottawa."
    What are patient decision aids? "Patient decision aids are tools that help people become involved in decision making by providing information about the options and outcomes and by clarifying personal values. They are designed to complement, rather than replace, counseling from a health practitioner."

  • Cain, Mary M., Robert Mittman, Jane Sarasohn-Kahn, and Jennifer C.Wayne. Health e-People: The Online Consumer Experience. Oakland, CA: Institute for the Future, California Health Care Foundation, 2000.

  • Conte, Christopher Networking for Better Care: Health Care in the Information Age. Jean Smith and Rachel Anderson, eds.Benton Foundation, 1999.

  • Christensen, Clayton M., et al., The Innovator's Prescription: A Disruptive Solution for Health Care [Hardcover, 2008] Authors: Clayton M. Christensen, Jerome H. Grossman M.D., Jason Hwang M.D. Jason Hwang M.D.
    "Our health care system is in critical condition. Each year, fewer Americans can afford it, fewer businesses can provide it, and fewer government programs can promise it for future generations. We need a cure, and we need it now."
  • Dijs-Elsinga, Joice, PhD*, Wilma Otten, Martine M. Versluijs, Harm J. Smeets, Job Kievit, MD, PhD, Robbert Vree, Wendeline J. van der Made, and Perla J. Marang-van de Mheen, PhD , Choosing a Hospital for Surgery: The Importance of Information on Quality of Care Medical Decision Making: First published on January 28, 2010 [Abstract] Objective: To assess whether patients use information on quality of care when choosing a hospital for surgery compared with more general hospital information.

  • Disaster Medicine and Public Health Literature

  • Eysenbach, Gunther. "Consumer health informatics" BMJ 2000;320:1713-1716 ( 24 June ) Unit for Cybermedicine, Department of [Clinical Social Medicine, University of Heidelberg] "...there is an increasing interest in reaching consumers and patients directly through computers and telecommunications systems. Consumer health informatics is the branch of medical informatics that analyses consumers' needs for information; studies and implements methods of making information accessible to consumers; and models and integrates consumers' preferences into medical information systems..."

  • Goldsmith, Jeff. The Internet and Managed Care: A New Wave of Information. Health Affairs 19(6):42–56, 2000.

  • Hyatt, Laura. Subacute Care: Redefining Health Care [Hardcover] "The basic concepts involved in effectively constructing a subacute care programme.... provides the necessary information for practical applications, and includes definitions, programme development and the impact of this trend on many professional healthcare disciplines...."

  • Hyman, Mark, The Blood Sugar Solution Take Back Our Health. Our health has been hijacked from us, taken from us slowly, quietly, over the past century. Our current food, social, family, school, work, faith-based, and community environments, health care institutions, and government policies make it hard for us to make healthy choices. We are presented with choices that foster bad habits. But together, getting and staying healthy is possible given the right information, tools, support, and collective action to take back our health . [ MarkHyman on Charlie Rose -- Video] [ 8 Steps to Reversing Diabesity Huffington Post Nov 2011]

  • Iacoboni, Stephen, "The Undying Soul: A Cancer Doctor's Discovery" [Publisher: SJI Publishing; First edition (December 30, 2010)] [for more information about the author's talk in Port Ludlow, see the PLVoice, March 2011, p.14]

  • Iverson SA, Howard KB, Penney BK., Impact of internet use on health-related behaviors and the patient-physician relationship: a survey-based study and review. J Am Osteopath Assoc. 2008 Dec;108(12):699-711. "Although patient use of online resources to locate health-related information is increasing, few large-scale studies investigating ramifications to patient health and the patient-physician relationship have been conducted in primary care or osteopathic medical settings.
    OBJECTIVES: To describe online health information-seeking behaviors among patients. To evaluate the effects of this information on patient self-care and the patient-physician relationship."

  • Joseph-Williams, Natalie; Rhodri Evans; Adrian Edwards; Robert G Newcombe; Patricia Wright; Richard Gro; Glyn Elwyn, Supporting Informed Decision Making Online in 20 Minutes: An Observational Web-log Study of a PSA Test Decision Aid J Med Internet Res 2010 (May 26); 12(2):e15 "Web-based decision aids are known to have an effect on knowledge, attitude, and behavior; important components of informed decision making. We know what decision aids achieve in randomized controlled trials (RCTs), but we still know very little about how they are used and how this relates to the informed decision making outcome measures."

  • Kassirer, Jerome P. Patients, Physicians, And The Internet. Health Affairs 19(6):115–23, 2000.

  • Keller, Daniel M., "Hand Hygiene Compliance Poor and Self-Assessment Unreliable," From Medscape Medical News (2011) "... of 9124 monitored hand hygiene opportunities from January 24 to July 31, 2011, the investigators observed 3208 opportunities in which hand hygiene was accomplished, resulting in a probability of hand hygiene performance of 0.352.... "So 35% of healthcare workers were compliant with the hand hygiene practices," ... That includes hand hygiene with either alcohol gel or soap and water. The burn unit had the highest compliance (58%), and the medical/surgical unit had the lowest (20%). Nurses performed statistically better than the overall rate, with 38.8% compliance...; physicians were significantly below the mean, at 27%. Women were 23% more likely to meet a hand hygiene opportunity than were men.... There was better compliance after patient contact than before."

  • Kenney, Charles: Transforming Health Care: Virginia Mason Medical Center's Pursuit of the Perfect Patient Experience. 2011
    • Better, Faster, More Affordable: How Virginia Mason Medical Center took a common complaint and delivered uncommon health care, Seattle Business Magazine, July 2011, pp.22ff. This excerpt from Transforming Health Care: Virginia Mason Medical Center’s Pursuit of the Perfect Patient Experience focuses on the work Virginia Mason did with Starbucks concerning back pain.
    • LEGENDS & LEADERS: Charles Kenney and Gary S. Kaplan, MD Greater Seattle Chamber of Commerce Feb 2011. "In 2001, Virginia Mason Medical Center set out to achieve its compelling vision to become The Quality Leader and to fulfill that vision, adopted the Toyota Production System as its management method. For decades, the manufacturing industry has employed this system - one of the top production methods in the world - to reduce waste, improve quality, reduce defects and increase worker productivity."
    • Virginia Mason Institute "We invite you to learn an internationally recognized approach to transform your organization. The Virginia Mason Institute can provide you with education and training in our management method, known as VMPS (Verginia Mason Production System). There are several training options available including online education. You can explore VMPS, increase your existing lean knowledge, obtain help in applying lean methodology to your organization, or get transformational training and coaching."

  • Kleinke, J.D. Vaporware.com: The Failed Promise of the Health Care Internet. Health Affairs 19(6):57– 71, 2000.

  • Lau, Annie YS, Enrico Coiera, Tatjana Zrimec, Paul Compton "Clinician Search Behaviors May Be Influenced by Search Engine Design," J Med Internet Res 2010 (Jun 30); 12(2):e25 [full text free in html]

  • Lorence, D. and H. Park Group disparities and health information: a study of online access for the underserved, Health Informatics Journal, March 1, 2008; 14(1): 29 - 38. [Abstract] [PDF] ... Access to information ... is now an essential part of consumer-centric healthcare management. To date little research has been done to differentiate levels of health information access on the Web by different subgroups, linking online socioeconomic characteristics and health seeking behaviors..."

  • McDonald, Clement J. Need For Standards In Health Information. Health Affairs 17(6):44–6, 1998.

  • Mayer, M. A., Karkaletsis, V., Archer, P., Ruiz, P., Stamatakis, K., Leis, A. (2006). Quality labelling of medical web content. Health Informatics Journal 12: 81-87 [Abstract] "As the number of medical websites in various languages increases, it is increasingly necessary to establish specific criteria and control measures that give consumers some guarantee that the health websites they are visiting meet a minimum level of quality standards. Further, reassurance is needed that the professionals offering the information are suitably qualified..." [Source]

  • Moran, Donald W. Health Information Policy: On Preparing For The Next War. Health Affairs 17(6):9–22, 1998.

  • G. Moubarak, A. Guiot, Y. Benhamou, A. Benhamou, and S. Hariri, "Facebook activity of residents and fellows and its impact on the doctor-patient relationship," Journal of Medical Ethics, December 15, 2010; (2010) jme.2010.036293v1.

  • Moyers, Bill. Healing and the Mind. 1993

  • Mukherjee, Siddhartha, The Emperor of All Maladies: A Biography of Cancer. NY: Scribner, 2010. "An exhaustive account of cancer's origins, The Emperor of All Maladies illustrates how modern treatments--multi-pronged chemotherapy, radiation, and surgery, as well as preventative care--came into existence thanks to a century's worth of research, trials, and small, essential breakthroughs around the globe. While The Emperor of All Maladies is rich with the science and history behind the fight against cancer, it is also a meditation on illness, medical ethics, and the complex, intertwining lives of doctors and patients..." [w/ extensive annotations for each chapter ("notes"), selected bibliography & index!]


    What is the Future of Cancer? For thousands of years, people have battled cancer in myriad forms. Today we still toil to triumph over the disease. Pulitzer Prize-winning writer and physician Siddhartha Mukherjee dissects cancer, from its historic roots to today’s most promising treatments. Can we count on a cure?

    • Another Video: Enrique Cerna interviews S.Mukherjee What if we thought of Cancer not as a disease, but almost as a person, with its own unique history and evolution? That’s exactly what Siddhartha Mukherjee has done in his new book, The Emporer of All Maladies: A Biography of Cancer. Mukherjee gives us a comprehensive history of cancer, from its “birth” to its “upbringing,” to the battle to control, conquer and cure it. In this Conversations, Enrique Cerna talks with Mukherjee about the progress we’ve made against cancer, and what’s in store for the future.

  • O'Connor, A.M. and M.J.Jacobsen, Decisional Conflicts: Supporting People Experiencing Uncertainty about Options Affecting their Health [PDF monograph on the Internet]. Ottawa: Ottawa Health Decision Centre; 2007.]

  • ORSZAG, Peter Health Care's Lost Weekend New York Times, October 3, 2010 Doctors, like most people, don’t love to work weekends, and they probably don’t enjoy being evaluated against their peers. But their industry can no longer afford to protect them from the inevitable.

  • Oster, Nancy, Lucy Thomas, Darol Joseff MD, Making Informed Medical Decisions: Where to Look and How to Use What You Find [Paperback] O'Reilly, 2000. You are involved in healthcare decisions--whether you want to be or not. Making Informed Medical Decisions acts like a friendly reference librarian, explaining: tips for researching for someone else, medical journal articles, statistics and risk, standard treatment options, complementary treatments, clinical trial, making an ally of your doctor, and determining your own best course.

  • Palmer, Michael. The Second Opinion [2009] "In this routine medical thriller from bestseller Palmer (The First Patient), Dr. Thea Sperelakis, an idealist who's been working for Doctors Without Borders in the Congo, rushes back to Boston after learning her physician father, Petros, an intimidating figure known as the Lion, is close to death, the victim of a hit-and-run. Thea faces one challenge after another, including having to resuscitate Petros when his heart stops beating. Her brilliant if socially challenged older brother, Dimitri, adds to her anxiety with his computer reconstruction of the accident, which indicates the driver struck Petros deliberately.... " [Amazon]

  • Pausch, Randy. The Last Lecture. N.Y.: Hyperion, 2008. On September 18, 2007, Carnegie Mellon professor and alumnus Randy Pausch delivered a one-of-a-kind last lecture that made the world stop and pay attention. It became an Internet sensation viewed by millions, an international media story, and a best-selling book that has been published in more than 35 languages. And it all started with Randy...
    Randy Pausch, 'Last Lecture' Professor Dies ABC, July 25, 2008.

  • Pettus, Mark. The Savvy Patient: How to Get the Best Health Care (The Ultimate Advocate for Quality Health Care) [Paperback], Capital Books, 2004 [Online: Introduction, Bibliography, Index]

  • Porter, Michael & Elizabeth Olmsted Teisberg. Redefining health care: creating value-based competition on results (Google eBook) 2006. "... internationally renowned strategy expert Michael Porter and innovation expert Elizabeth Teisberg reveal the underlying-and largely overlooked-causes of the problem, and provide a powerful prescription for change. The authors argue that participants in the health care system have competed to shift costs, accumulate bargaining power, and restrict services, rather than create value for patients..."

  • Queller, Jessica. Pretty is what changes. 2009 “My mother had breast cancer and died of ovarian cancer eleven months ago. My cousin, Dr. Alan Heilpern – your colleague – scheduled the appointment for me. I gave blood at your lab. I’ve left messages at your office repeatedly without the courtesy of a return phone call, and I can’t understand why I’ve been unable to obtain the results.”

  • Reid, R., The Healing of America: A Global Quest for Better, Cheaper, and Fairer Health Care Penguin 2010. "... The Healing of America lays bare the moral question at the heart of our troubled system, dissecting the misleading rhetoric surrounding the health care debate. Of course, every health care system has its troubles: Reid finds poorly paid doctors in Japan, endless lines in Canada, mistreated patients in Britain, Spartan facilities in France. Yet all of them cover everybody, produce better health results, and spend far less than the United States. And none leaves its citizens one diagnosis away from financial ruin...."

  • Santana, Silvina, Berthold Lausen, Maria Bujnowska-Fedak, Catherine Chronaki, Per Egil Kummervold, Janne Rasmussen, Tove Sorensen, Online Communication Between Doctors and Patients in Europe: Status and Perspectives J Med Internet Res 2010 (Jun 15); 12(2):e20 [HTML free!] "Use of the Internet to communicate with a known health professional is still rare in Europe. Legal context, health policy issues, and technical conditions prevailing in different countries might be playing a major role in the situation. Interest in associated eHealth services is high among citizens and likely to increase"

  • Schorr, Andrew (with Mary Adam Thomas). The Web-Savvy Patient: An Insider's Guide to Navigating the Internet When Facing Medical Crisis [Paperback] (Seattle, 2011) with Video [Author's Website] [Patient Power] [Book Review [on "ABOUT"]

  • Servan Schreiber, David. Anticancer: A New Way of Life, Viking Adult, 1st ed., September 2008. [Amazon] [both Websites include videos] When David Servan-Schreiber, a dedicated scientist and doctor, was diagnosed with brain cancer, his life changed. Confronting what medicine knows about the illness and the little-known workings of his body's natural cancer ­fighting capacities, and marshaling his own will to live, Servan-Schreiber found himself on a fifteen-­year journey from disease and relapse into scientific exploration and, finally, to health...

    ... Advocating a sea change in the way we understand and confront cancer, Anticancer is a radical synthesis of science and personal experience, an inspiring personal journey, and certainly a guide to "a new way of life..."
    [ YouTube Videos]

  • Stokowski, Laura A. RN, MS Healthcare Anywhere: The Pledge of Telehealth MedscapeToday, Oct 30, 2008 "...Forward-thinking healthcare providers are turning to digital solutions not only to cope with the anticipated surge in patients with chronic diseases, but also to shift the focus of healthcare to prevention, saving money by keeping patients at home and out of the hospital.... Geography is no longer a barrier to care, and healthcare is increasingly accessible to the medically underserved in rural or remote areas of the country..."

  • Tan, Joseph K. H., Samuel Barry Sheps, Health decision support systems [1998] [Google Book - Preview online]

  • Turner, Leigh G., Medical Tourism: Quality of Health Services: Informed Patient Choice, Medscape, 2011. ... Information disclosure and discussions related to informed choice should occur before customers of medical tourism companies sign contracts and pay for health-related services...

  • Waitzkin, Howard & John D. Stoeckle Information control and the micropolitics of health care: Summary of an ongoing research project "...Information transmittal is closely related to the clinical problems of history taking, medical records, compliance, satisfaction, physiologic response to therapy and patient delay in reporting symptoms.
    The sociological considerations guiding the research are summarized under four headings: (1) the problems of uncertainty and power; (2) the definition of information; (3) sociolinguistics and the diffidence of the sick poor; and (4) ethnomethodology and common-sense constructs. The doctor-patient relationship is viewed as a micropolitical situation, in which information control is used, at least in part, to maintain patterns of dominance and subordination.

    Weiner, Jonathan. His Brother's Keeper: A Story from the Edge of Medicine (2004)

    Jonathan Weiner is a Pulitzer Prize-winning author of non-fiction books on his biology observations, in particular evolution in the Galápagos Islands, genetics, and the environment.

    "Stephen Heywood was twenty-nine years old when he learned that he was dying of ALS -- Lou Gehrig's disease. Almost overnight his older brother, Jamie, turned himself into a genetic engineer in a quixotic race to cure the incurable... The book brings home for all of us the hopes and fears of the new biology. ... We learn about gene therapy, stem cells, brain vaccines, and other novel treatments for such nerve-death diseases as ALS, Alzheimer's, and Parkinson's -- diseases that afflict millions, and touch the lives of many more."

  • Van De Belt, Tom H, Lucien JLPG Engelen, Sivera AA Berben, Lisette Schoonhoven Definition of Health 2.0 and Medicine 2.0: A Systematic Review J Med Internet Res 2010 (Jun 11); 12(2):e18 [HTML free!]

  • Weitzman, Elissa R; Liljana Kaci; Kenneth D Mandl, Sharing Medical Data for Health Research: The Early Personal Health Record Experience J Med Internet Res 2010 (May 25); 12(2):e14 [free in html]

  • Wennberg, John E., Tracking Medicine: A Researcher's Quest to Understand Healthcare. 2010. Amazon Book page

  • PLHealth Video "Collection"

Disclaimer:
The WebGuys behind this assembly of Web resources are not responsible for the content of the Web Sites to which they have provided links.
Nothing on this site shall constitute medical advice.

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Last updated: April 2012 (gk) -- krumme(at)comcast(dot)net


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