We had a very informative & educational Cancer Forum!|
Photos by Peggy Lee Flentie
VIPSs at the April 11 Cancer Forum: (f.l.t.r.) Susan Clements (OMCC, Sequim), Lanny Turay (JHC, PT),
Jeinell Harper (JHC, PT), Alex Hsi (PCC, Poulsbo), Ann Murphy (JHC, PT),
Ursel Krumme (PLVC Committee) , Dennis Willerford (HHP, Poulsbo) and Terry Umbreit (PLVC President)
See "Forums" & "Events" for further details. More photos and results from the event will be posted on this (Cancer) page.
Dennis Willerford M.D
Alex Hsi M.D.
Dr. med. Manfred Henne's (center) InHealth Imaging
Doctor: What Drug Did You Mean?
SPRING FORUM 2015
April 11, 2015: 1p.m. Bay Club
Navigating Options and Resources
from Diagnosis to Survivorship
(with Emphasis on Resources available
in Port Townsend, Poulsbo & Sequim)
CLICK for large version!
Autumn's Snacks: Nutritious & Sooo Delicious!
Photos by Peggy Lee Flentie
- General Cancer Screening/Detection & Treatment Guidelines and Research
Guidelines for the Early Detection of Cancer [ACS: American Cancer Society]
Cancer Prevention & Detection Guide: by Age, Frequency of Check, Gender & Cancer Type etc.
[NFCR: National Foundation for Cancer Research]
- Cancer in your Genes?
- Genetics Home Reference (NIH)
Is Cancer Hiding in your Family History? -- Part I (Video) [UW Mini Medical School]
[Lecture by Mary Claire King, Ph.D. & 13 Honorary Doctorates]
BRCA1 and BRCA2: Cancer Risk and Genetic Testing [Nat Cancer Inst Fact Sheet]
-- BRCA1 and BRCA2 are human genes that belong to a class of genes known as tumor suppressors. Mutation of these genes has been linked to hereditary breast and ovarian cancer.
-- A woman's risk of developing breast and/or ovarian cancer is greatly increased if she inherits a deleterious (harmful) BRCA1 or BRCA2 mutation. Men with these mutations also have an increased risk of breast cancer. Both men and women who have harmful BRCA1 or BRCA2 mutations may be at increased risk of other cancers.
-- Genetic tests are available to check for BRCA1 and BRCA2 mutations. A blood sample is required for these tests, and genetic counseling is recommended before and after the tests.
-- If a harmful BRCA1 or BRCA2 mutation is found, several options are available to help a person manage their cancer risk......
- Genetic Testing Facilities and Cost
Probing DNA to Understand Disorders Columns, University of Washington, June 2013, pp.26f.
UW geneticist who discovered breast-cancer genes flying high over Supreme Court ruling; Seattle Times, June 13, 2013
[originally here in ST]
the practice of patenting human genes has come to an end. Exclusive rights to genetic material have hampered research and forced patients to rely on a limited number of costly, commercial tests, said Gail Jarvik, head of medical genetics.
As soon as the ruling was issued, several companies announced the availability of new genetic screens that are cheaper than those produced by Myriad Genetics..."
- A Plea for Genetic Testing,
[www.nurse.com, March 12, 2007]
- Genetic Advocacy Resources
FORCE (Facing our Risk of Cancer Empowered)
e.g. Laws regarding genetic discrimination [Genetic Information Nondiscrimination Act (GINA) was signed into law on May 21, 2008]
Cancer Information Summaries: Screening/Detection (Testing for Cancer)
[NCI's PDQ: National Cancer Institute Physicians' Data Query]
Cancer Screening Overview (NCI's PDQ)
The US Oncology Network
"The US Oncology Network is one of the nation’s largest networks of community-based oncology physicians dedicated to advancing cancer care in America. Like-minded physicians are united through The Network around a common vision of expanding patient access to high-quality, integrated cancer care in communities throughout the nation."
NexCura, Inc. (a Seattle start-up) "was formerly known as Cancerfacts.com. The company was founded in 1998 and is based in The Woodlands, Texas. As of February 24, 2010, NexCura, Inc. operates as a subsidiary of US Oncology Inc." (Business Week, 2012)
"NexCura, Inc. provides online education and information for guiding treatment decisions. The company offers Cancer Profiler tools, which allow users to enter information on a cancer diagnosis and receive detailed treatment information based on peer-reviewed research."
- Research (Videos)
- Disrupting Cancer (CBS 60Minutes by Dr. Gupta, december 2014; ("The billionaire shaking up the world of cancer")
Cancer has outwitted scientists and doctors for decades. More than 1,500 people still die of the disease every day in this country. But scientists will tell you they have learned more about cancer in the last five years than ever before. And no one is more optimistic about what that will mean for patients than Dr. Patrick Soon-Shiong....
- CANCER CARE
- Abbreviations & Acronyms:
- Washington Cancer Treatment Centers
- On the Peninsulas
Jefferson Healthcare Oncology Clinic
Ann E. Murphy, MD, Medical Oncology
Jefferson Healthcare Oncology Clinic
Port Townsend, Washington 98368
- Diagnostic Imaging Centers (incl. in Poulsbo) [plhealth]
Harrison HealthPartners Hematology & Oncology, Poulsbo
Harrison Poulsbo's new Hematology & Oncology center provides outpatient cancer services in a refined environment designed specifically for the unique needs of cancer patients.
19500 10th Avenue NE
Poulsbo, WA 98370
- Peninsula Cancer Center, Poulsbo
"On September 1, 2009 Peninsula Cancer Center opened its doors. Establishing a premier Cancer Center on the Peninsula is a realization of a shared dream of Dr. Berit Madsen and Dr. R. Alex Hsi. For more than a decade, the two physicians practiced in Seattle and treated many patients traveling from the Kitsap and Olympic Peninsulas. The daily commute took a physical and emotional toll on patients. They knew that there was a real need for additional radiation oncology services on the Peninsula. Soon after opening Dr. Heath Foxlee, a leading Radiation Oncologist based in Port Townsend, Washington, joined the team."
- List and Explanation of Treatment technologies
- Elekta Synergy Linear Accelerator
- Elekta VMAT
- Prostate Brachytherapy
- Augmenix SpaceOar™ U.S. Clinical Study
- Axxent® eBx™ U.S. Clinical Study
- Olympic Medical Cancer Center, Sequim
- Our Oncologists
- TrueBeam: Revolutionary Radiotherapy Technology
- What is TrueBeam? [also: for which cancers?]
- The TrueBeam Story
"With TrueBeam, we have seamlessly integrated imaging, beam delivery and motion management to produce a system that delivers unmatched synchronization. The result is a revolutionary and elegant solution with improved operation, precision and speed."
- Varian Medical Systems Introduces Revolutionary New TrueBeam™ System for High-Precision Image-Guided Radiotherapy and Radiosurgery
"When we introduced RapidArc® radiotherapy, we were thrilled to see treatments done in about 2 minutes," said Guertin. "With TrueBeam, RapidArc treatments can now be completed in about a minute."
- RapidArc Technology
"RapidArc® radiotherapy technology is a major advance from Varian Medical Systems that improves dose conformity while significantly shortening treatment times. ... delivers treatments two to eight times faster than our fastest dynamic treatments today and increases precision - a winning combination that enables physicians to improve the standard of care and treat more patients."
- Varian Medical Systems, Palo Alto, Ca
"Varian Medical Systems, Inc., of Palo Alto, California, is the world's leading manufacturer of medical devices and software for treating cancer and other medical conditions with radiotherapy, radiosurgery, proton therapy, and brachytherapy. ... supplies informatics software for managing comprehensive cancer clinics, radiotherapy centers and medical oncology practices. Varian is a premier supplier of tubes and digital detectors for X-ray imaging in medical, scientific, and industrial applications and also supplies X-ray imaging products for cargo screening and industrial inspection"
Comparing TrueBeam and Elekta Vmat
- The Jane Thompson Russell Cancer Care Center, Gig Harbor [at St Anthony's Hospital]
- In Seattle & Tacoma
Seattle Cancer Care Alliance is a world-class cancer treatment center that unites doctors from
Our goal, every day, is to turn cancer patients into cancer survivors.
- Seattle Cancer Care Alliance (Information Resources)
MAJOR TREATMENT CATEGORIES: (SCCA)
- Bone Marrow Transplant
Doctors at the Fred Hutch Bone Marrow Transplant Program at Seattle Cancer Care Alliance (SCCA) have performed more than 14,000 bone marrow transplants—more than any other institution in the world.
Clinical use of bone marrow transplantation was first developed at Fred Hutch more than 40 years ago, under the direction of E. Donnall Thomas, MD, who won the Nobel Prize in 1990 for his groundbreaking transplant work. The diseases we treat most often with transplants are lymphoma, multiple myeloma, and acute myelogenous leukemia. We are also advancing the use of transplants for other cancers, bone marrow deficiencies, inborn errors of metabolism, and immune disorders.
- Genetic Sequencing
A new diagnostic tool called UW-OncoPlex is making a positive difference in the treatments and outcomes of many Seattle Cancer Care Alliance (SCCA) patients. Developed by researchers at UW Medicine, UW-OncoPlex tests a patient’s tumor tissue for the presence of characteristic genetic abnormalities called driver mutations. Each driver mutation causes tumors to behave differently on the molecular level and, thus, have different vulnerabilities.
The UW-OncoPlex panel tests for most of the driver mutations we’ve identified as having a highly effective treatment currently available for use. If your tumor tests positive for a particular mutation, your doctor will know which treatment will likely be most effective for you.
Cancer patients seeking the most advanced treatments for their disease will find a broad range of immunotherapy options available at Seattle Cancer Care Alliance (SCCA). Anchored by the widely acclaimed Fred Hutchinson Stem Cell Transplant Program, SCCA is also known for special expertise in selecting and treating patients with the cancer vaccine Provenge for prostate cancer; with high-dose interleukin-2 cytokine therapy for renal cell cancer and melanoma; and with antibody based radioimmunotherapies for lymphoma. Patients can also access investigational immunotherapy treatments—using T-cells, monoclonal antibodies, and gene therapy—in clinical trials that are available only at SCCA and at limited sites around the country.
- Medical Oncology
Seattle Cancer Care Alliance (SCCA) patients receive medical oncology treatment from leading physicians who specialize in particular cancers and are experts in their field. They design individualized treatment plans to target your tumor and minimize the effects on healthy tissue. Your team also works closely with you to manage any side effects and help you take the best possible care of yourself during treatment.
SCCA patients may receive treatment from a medical oncologist at either SCCA on Lake Union, SCCA at EvergreenHealth in Kirkland, or SCCA Medical Oncology at Northwest Hospital. These facilities feature state-of-the-art equipment, comfortable facilities, and conscientious providers to make your treatment experience the best it can be.
- Proton Therapy
Proton therapy is now available to cancer patients in the Pacific Northwest for the first time. Our doctors are excited to have proton therapy as part of their arsenal in making the most targeted and effective treatments available to patients. An advanced form of radiation treatment, proton therapy can be calibrated with great precision to selectively kill cancer cells.
SCCA Proton Therapy, A ProCure Center, located on UW Medicine's Northwest Hospital & Medical Center campus (view map and directions), benefits patients in our region who no longer need to travel to other parts of the country for a multi-week course of treatment. Because of the significant investment required in building and operating a proton therapy facility, this treatment is available in only about a dozen sites in the U.S.
- Radiation Oncology
Patients of Seattle Cancer Care Alliance (SCCA) receive radiation therapy from leading radiation oncologists who specialize in particular cancers and are experts in their field.
Our doctors design individualized treatment plans to target your tumor and minimize the effects on healthy tissue. We will work closely with you to manage any side effects and help you take the best possible care of yourself during treatment.
- Surgical Oncology
A surgical oncologist treats cancer by removing diseased tissue and often nearby lymph nodes, the parts of your immune system that act as filters, where cancer may spread.
Surgery is the oldest form of cancer treatment. It is often used in conjunction with medical oncology treatments—including chemotherapy, hormone therapy, and immunotherapy—and radiation oncology treatments.
Surgery can be used to help diagnose and determine the stage of a cancer. It can even prevent cancer from occurring in a person who’s at particular risk—for example, when doctors remove colon polyps that might become cancerous. Reconstructive surgery restores form or function after cancer treatment. Surgery is also used to relieve symptoms associated with disease; this is called palliative surgery.
- Swedish Cancer Institute
- Providence Regional Cancer Partnerships
- CHI Franciscan Health Cancer Center, Tacoma
Our cancer care locations include St. Joseph Medical Center in Tacoma, St. Francis Hospital in Federal Way, St. Elizabeth Hospital in Enumclaw, St. Clare Hospital in Lakewood, the Jane Thompson Russell Cancer Care Center in Gig Harbor, and the Franciscan Highline Cancer Center in Burien.
Overlake Medical Center Offers Cancer Patients Faster, More Precise Radiotherapy
September 10, 2013
BELLEVUE, Wash. – August 22, 2013 – Overlake Medical Center is now treating cancer patients faster and with greater precision using the new TrueBeam radiotherapy and radiosurgery treatment system from Varian Medical Systems. It is an innovative image-guided radiotherapy technology enabling a radically different approach to treating cancer.
William Brent Reece, MD treated the first patient using the hospital’s new system on July 2, 2013. This patient recently finished his course of treatment for lung cancer.
With dose delivery rates that are 40–140 percent higher than earlier generations of Varian technology, the TrueBeam system can complete a treatment commensurately faster.
- Breast Cancer Info [NCI]:
- Breast Cancer Info: [SCCA: Seattle Cancer Care Alliance]
- Treatment Options
- Peninsula Breast Center [Poulsbo]
... is the local solution for women seeking state-of-the-art breast cancer care services. Peninsula Breast Center’s physicians are accomplished, caring local specialists that have a long-standing commitment to women’s health. They apply a comprehensive approach to breast health, ensuring that patients have the best possible outcomes and are treated with dignity....
- The Team (Members)
Breast Cancer Guidelines for Patients [NCCN: National Comprehensive Cancer Network, 110 page document]:
- Breast Cancer Info [ACS: American Cancer Society]
- Breast Cancer Diagnostics with Bayesian Networks
[Bayesia; download White Paper, May 2013, pdf (incl. bibliography!) ]
- Support Resources
- Breast Cancer Survivor Volunteers who provide support for people recently diagnosed with breast cancer:
- CaringBridge: Free, secure journal website helps you or a family member tell your
story to loved ones and friends.
Look Good...Feel Better
"... is a non-medical, brand-neutral public service program that teaches beauty techniques to cancer patients
to help them manage the appearance-related side effects of cancer treatment. Look Good…Feel Better group
programs are open to all women with cancer who are undergoing chemotherapy, radiation, or other forms of treatment."
[Contact(s): Patient Services Center (866) 500-3272]
- Breast Cancer Specialty Retailers or Organizations with products available including professional fitting services:
Shine: features specialty products like breast prostheses, compression graments and hair alternatives [located at Seattle Cancer Care Alliance's House, 207 Pontius Ave N, Suite 101, Seattle, WA 98109: firstname.lastname@example.org -- 206-288-7560]
Comprehensive Listings for Hats, Scarves, Turbans and Wigs
- Healthy Reflections Botique Featured Products: Mastectomy/Chemotherapy/Radiation-Related Items including wig collection/ headware accessories [MultiCare Gig Harbor Medical Park: 253-530-8118]
- Judy's Intimate Apparel Products: Mastectomy /Lumpectomy-related items including swimwear; [Olympia: 1/888-357-8807; Tacoma 1-888-474-4404]
For a Doctor, Survival and Transformation New York Times, By JANE E. BRODY, October 10, 2011
"... There’s never a good time to have cancer," she said. But this was clearly one of the worst. She was working full time, having recently been named director of breast pathology at the University of Washington Medical Center in Seattle. Her husband, Ryan, had just opened a new restaurant, and she was mother to an infant son and a 4-year-old daughter. ..."
- Dr. Susan Love Research Foundation [Breast Cancer]
The Foundation's Mission is "to eradicate breast cancer and improve the quality of women's health through innovative research, education and advocacy." It sponsors symposia and funds innovative research through pilot grant programs. It also offers a free interactive decision-making support tool -- the NextProfiler Tool for Cancer -- designed to help cancer patients and their physicians make better informed treatment decisions using information from evidence-based, peer-reviewed medical literature. The site also offers Monthly Blogs and Web Chats which present the latest research findings on breast cancer topics.
- Queller, Jessica. Pretty is what changes. 2009
"...Queller had herself tested for the BRCA “breast cancer” gene mutation.... "
“My mother had breast cancer and died of ovarian cancer eleven months ago... I gave blood at your lab. I’ve left messages at
your office repeatedly without the courtesy of a return phone call,
and I can’t understand why I’ve been unable to obtain the results....”
The results came back virulently positive, putting her at a terrifyingly elevated risk of developing breast cancer before..."
- Frequently Asked Questions About Genetic Testing [Johns Hopkins Medicine]
- "Reconstructing Hope" By Diane Mapes, University of Washington Columns, June 2013,
"...Currently, I’m participating in a clinical trial involving my two UW doctors. It’s a radical proposition: not reconstructing, but regenerating breasts by “tissue engineering,” which my doctors say is the wave of the future for breast cancer survivors like me...."
- Colon Cancer Information [NCI]:
V OTHER CANCER SUPPORT RESOURCES