"I couldn't believe that all my medical decisions were being made by doctors
who were basing it on my laboratory report. And yet, I didn't have a copy of
that report or know what it said. Life and death decisions are based upon this
- Personal Health Records:can take on different forms (e.g. paper vs computer based)
and permit different degrees of access by YOU or YOUR PROVIDER.
Differences in access are not just caused by permission requirements and other legal facets,
but also by reliability of computers, Internet links, clarity of organization of directories
and file folder, the nature of organization and location of paper records or disks (e.g.
shoe boxes in the basement versus well labeled and subdivided ringbinders in a
readily accessible location, etc.).
Simplifying the multitude of characteristics, we want to distinguish between these types of PHRs:
- Predominantly Paper-Based, physically distinct PHR (usually, but not necessarily, stored at home)
Paper-based or digital PHRs or both?: Printed laboratory reports, copies of clinic notes, and health histories created by the individual may be parts of a paper-based PHR,
organized, for example in a ring binder. It is low cost and accessible without a computer. Paper-based PHRs, however,
may not be handy, such as when you are travelling, or difficult to share with other providers unless you bring your
copies with you to an appointment or sign a release form to have records submitted beforehand. The same applies to digital records whenever computer
or software compatibility or the granting of permission or access to passwords is an issue. In the best of cases, Internet-based PHR's are
readily available practically anywhere on a secure website that can be accessed by the appropriate person.
Paper records can also be printed from most electronic PHRs and added to the ringbinder. Paper-based PHRs, however, can be subject to physical loss (incl. by fire)
but may be accessible (but also damaged) during a natural disaster when power or Internet access may be lost. Thus, paper/digital redundancy may be desirable!
- Digital (Computer or Internet based)
- On Home or Mobile Computer
- self generated & organized
- pulled in from providers' system (e.g. EPIC)
- combination, e.g. using software such as Epic's free-standing "Lucy"
- On Provider's Computer
(often called "Electronic Health Record")
- Accessible to Patient via Internet
- Accessible to other providers, but not to Patient
- Not accessible to other providers or patients
- "Cloud" based (e.g. MS Vault)
"HealthVault's primary competitors are Google Health, Dossia and World Medical Card.
Google announced in June 2011 that the Google Health will be discontinued as of January
1st, 2012, and has encouraged users to either download their data or to directly transfer
it to Microsoft's HealthVault service before January 1st, 2013."
- Shared Medical Records & Online Doctor - Patient Communication (Model II of PLHealth Information Models)
Are there different types of personal health records (PHRs)? [healthit.gov]
PERSONAL HEALTH RECORDS: WHAT HEALTH CARE PROVIDERS NEED TO KNOW [healthit.gov].....
[Other PHR Resources: Wikipedia with extensive write-up and bibliography!]
EPIC: Personal Health Records (PHRs), Portals and Mobile Applications ("Lucy" etc.)
Lucy is a (freestanding) PHR that is not connected to any facility's electronic medical record system. It stays with patients wherever they receive care and allows them to organize their medical information in one place that is readily accessible. Patients can enter health data directly into Lucy, pull in MyChart data or upload standards-compliant Continuity of Care Documents from other facilities.
Kaiser Permanente's My Health Manager
"MyGroupHealth" (a Tour)
Why Epic myChart is NOT a Personal Health Record [healthcarerevisited.com; June 7, 2011]
How to create a Personal Health Record or Portfolio
Maintaining Your Own Health Records?
(by Ursel Krumme, RN, MA, Wellness Resource Center)|
Many of us have found out the hard way that we can't assume that our medical providers are part of an efficient,
well-connected health care "system". All too often, we have to prod the system along and make sure that our busy
provider actually sends the records, as promised, to the next specialist before we meet. In addition, we want to secure our own copies of the lab results and appointment summaries, since we may need them for future providers, visits to the ER or an urgent care clinic, or for second opinions, to say nothing about our own need to be fully informed.
The law in Washington for “Medical Records - Health Care Information Access“ since 1993
(RCW 70.02.080), says
we have the right to receive copies of our personal health record upon a written request within fifteen working days
(plhealth.org/personalhealthrecords.html#RCW). Now, it should just be a matter of being diligent and overcoming our natural hesitation
to request and then insist on actually receiving copies of reports such as:
- blood and urinalysis results
- imaging reports (including discs): CT, MRI, ultrasound scans
- biopsy findings
- procedure/Operating Room reports
As you are organizing your personal health binder, consider also completing the Port Ludlow Fire & Rescue’s
“File of Life Medical Information Cards”, a magnetic form to place on your refrigerator -- which EMT’s look for
when responding to “911” calls -- and a version for your wallet. It asks you to check all existing conditions and allergies,
current medications, and location of advance directives.
A very helpful video related to Personal Health Records (Lecture by UW Prof James Ralston)
can be found under Model 2!
Published in PL Voice, November 2011, p.10
Permission to Release Health Information Forms
The Revised Code of Washington (RCW) is the compilation of all permanent laws now in force.
PHR and Patient Education
- PHR Solutions (Heathwise)
"Give Your Patients the Key to Self-Care. Giving people access to the health data in their PHRs is an important step in creating informed consumers.
Make sure they understand what their data means..."
"Make your PHR the go-to place for patient education. Personal health data added into a PHR (personal health record) can trigger new questions
from people, like “What do these new test results mean to me? When should I call my doctor? Are my side effects normal?” ...
Say hello to smart patient education delivery. You can automatically populate your PHR system with specific health content.
And that helps people get the answers to their questions about their test results, diagnoses, and medicines...
Personal Health Information Organization
The Future of Personal Health Records [University of Wisconsin]
One of the nation's few nurse-industrial engineers ... (is) leading an eight-year-long national effort to come up with a vision for personal health records that will go far beyond the current crop of ideas for helping people make decisions about their own health.
Usage Patterns of a Personal Health Record by Elderly and Disabled Users
AMIA Annu Symp Proc. 2007; 2007: pp.409–413.
Published online 2007. PMCID: PMC2655817
Eung-Hun Kim,1 Anna Stolyar,2 William B. Lober,2,3 Anne L. Herbaugh,3 Sally E. Shinstrom,3 Brenda K. Zierler,2,3 Cheong B. Soh,4 and Yongmin Kim1
2 Medical Education and Biomedical Informatics
3 Behavioral Nursing and Health Systems, University of Washington, Seattle, WA USA;
4 Biomedical Engineering Research Centre, Nanyang Technological University, Singapore
This is an Open Access article: verbatim copying and redistribution of this article are permitted in all media for any purpose
Personal Health Records (PHRs) are increasingly recognized as a strategy to improve patient-provider communication, availability of health information, and quality of care, by making the delivery of care more patient-centered. However, not much is known about the effects of self-managing personal health information...
- KFTF: Keeping Found Things Found [Univ. of Wash Information School]
What is KFTF?
Much of our lives is spent in the finding of things. Find a house or a car that's just right for you.... But, once found, what then?
As with other things, so it is with our information. Finding is just the first step. How do we keep this information so that it's there later when we need it? How do we organize it in ways that make sense for us in the lives we want to lead?
How do I get a copy of my Medical Records:
Harrison Medical Center: Medical Records: Frequently Asked Questions
Accessing Medical Records (University of Wash Medical Center)
UW Medicine wants to provide excellent service when responding to patient requests for medical records. In order to protect our patient’s privacy and confidentiality, we have established a process for requesting copies of records or requesting an amendment to the medical record. Please click on the applicable link below to access the appropriate form. You may download the form and fax or mail the completed form to the applicable entity for which you are requesting records.
Please allow 15 days to process a medical records request.
- Patients requesting copies of their own medical records
- Patients requesting UW Medicine to release information to outside provider/third party (...)
- Request records from outside provider (...)
- Request to correct or amend your medical record (...)
"My Group Health" (online Tour) [Group Health Cooperative, Seattle] ("My Group Health" is Group Health' version of Epic's "MyChart")
•E-mail Health Care Team
•Consulting Nurse Calls
•Urgent Care & Hospital Services
•Lab & Test Results
•Blood Pressure & Weight
•Letters & Vision Prescriptions
•Refill For Yourself
•Refill For Someone Else
•Check Order Status
•Fill Out Questionnaire (Health Profile)
•Explanation Of Benefits
•Health Coverage Documents
•Benefits Usage Status
Electronic Health Records:
InformationSecurity and Medical Identity Fraud
- PLHealth: Models I & II (Health Information Technologies & Record Sharing)
- Harrison Medical Center (Electronic Medical Records)
- Epic at Harrison Communique, Summer 2014 Kitsap Medical Society, pdf, scroll to p.12
Written by: Matt Voorsanger, MD
- Providence - MyChart
"My Chart" [Swedish Medical Center, Seattle]
"EHR Rankings Suggest 'Epic' Shakeout",
Medscape Medical News, Robert Lowes, Dec 17, 2012 [you may need to sign-up for free Medscape services]
"... Epic received the company's Best of KLAS Award for EHRs for medical practices with from 11 to 75 physicians and those with more than 75 physicians.
It also took top honors in the category of inpatient EHRs. Meanwhile, Athenahealth had the number 1 EHR for practices with 1 to 10 physicians....
Epic has long dominated the EHR market for jumbo group practices. The smaller practice categories over the years have been captured by vendors
such as eClinicalWorks, Greenway Medical Technologies, Amazing Charts (which won the 1- to 10-physician category in 2011), and Athenahealth,
the number 1 vendor in the 11- to 75-physician category last year... "
EpicCare Ambulatory Electronic Medical Record (EMR)
EpicCare combines chart review, order management, and documentation in a fast system that can learn your preferences while you work. It organizes patient information, suggests actions, and guides coordinated care across physical care settings. EpicCare's embedded analytics and population management infrastructure support the transition to value-based care models.
- EHR Watch [Electronic Health Records]
"Brought to you by the editors of Healthcare IT News and Healthcare Finance News,
EHRWatch.com offers news, commentary and community participation on the developments in electronic health
records in one place. Topics covered include practice, funding, product integration, standards developments
and trends in the implementation of electronic health records. "
Personal Health Records and Travel (Medical or Health Passport)
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